Conducting Research With an Adolescent Diagnosed With Fragile X Syndrome

Forum Qualitative Sozialforschung / Forum: Qualitative Social Research (FQS)

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Field Value
 
Title Conducting Research With an Adolescent Diagnosed With Fragile X Syndrome
Jugendliche mit diagnostiziertem Fragile-X-Syndrom: eine Fallstudie
 
Creator Weber, Chantel Lynette
 
Subject education;educational psychology;disability studies
disability; adolescent; qualitative research; fragile X syndrome; case study

Behinderung; Adoleszenz; qualitative Forschung; Fragile-X-Syndrom; Fallstudie
 
Description In this article I address the reflexive nature of research undertaken when I investigated the presence of resilience found in an adolescent girl diagnosed with fragile X syndrome. The highlights of this article include specific challenges I experienced when conducting research with this adolescent and how I have adapted the process accordingly. These challenges involve the planning and preparation before data commenced; the influence of sensory integration, behavioral, cognitive and language characteristics of fragile X syndrome on an adolescent girl; and the aspects of ethical and rigorous research. I have also included recommendations such as guidelines for other researchers interested in conducting a similar study with adolescents affected by fragile X syndrome. I hope that with this article, other researchers would be provided with a better understanding of how to proceed with research that involves individuals with disabilities and more specifically, individuals diagnosed with fragile X syndrome.URN: http://nbn-resolving.de/urn:nbn:de:0114-fqs1702102
In diesem Artikel skizziere ich einen reflexiven Forschungsansatz, mit dessen Hilfe ich die Resilienz einer Jugendlichen mit diagnostiziertem Fragile-X-Syndrom untersucht habe. Ich berichte von den spezifischen Herausforderungen und von meinem Versuch, mein Forschungsvorgehen sukzessive anzupassen. Zu den Herausforderungen gehörten u.a. Planungsarbeiten im Vorfeld der Datenerhebung; der Einfluss der sensorischen Integration aufseiten der Untersuchungsteilnehmerin; behaviorale, kognitive und sprachliche Charakteristika, die mit dem Fragile-X-Syndrom einhergehen sowie ethische und forschungsbezogene Besonderheiten. Zusätzlich habe ich Empfehlungen für Forschende formuliert, die mit ähnlichen Thematiken befasst sind. Ich hoffe, auf diese Weise zum Verständnis von Menschen mit Behinderungen und spezifischer von Menschen mit diagnostiziertem Fragile-X-Syndrom beitragen zu können.URN:
 
Publisher Forum Qualitative Sozialforschung / Forum: Qualitative Social Research
Forum Qualitative Sozialforschung / Forum: Qualitative Social Research
 
Contributor

 
Date 2017-03-31
 
Type info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Einzelbeiträge

Single Contributions
reflective
Contribuciones libres
 
Format text/html
application/pdf
 
Identifier http://www.qualitative-research.net/index.php/fqs/article/view/2694
10.17169/fqs-18.2.2694
 
Source Forum Qualitative Sozialforschung / Forum: Qualitative Social Research; Vol 18, No 2 (2017)
Forum Qualitative Sozialforschung / Forum: Qualitative Social Research; Vol 18, No 2 (2017)
1438-5627
 
Language eng
 
Relation http://www.qualitative-research.net/index.php/fqs/article/view/2694/4101
http://www.qualitative-research.net/index.php/fqs/article/view/2694/4102
 
Rights Copyright (c) 2017 Chantel Lynette Weber
http://creativecommons.org/licenses/by/4.0
 

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