Qualitative Exploration of Experiences and Consequences of Health-related Stigma among Indonesians with HIV, Leprosy, Schizophrenia and Diabetes

Kesmas: National Public Health Journal

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Title Qualitative Exploration of Experiences and Consequences of Health-related Stigma among Indonesians with HIV, Leprosy, Schizophrenia and Diabetes
 
Creator Rai, Sarju Sing
Irwanto, Irwanto
Peters, Ruth M.H.
Syurina, Elena V.
Putri, Annisa Ika
Mikhakhanova, Altana
Naniche, Denise
Zweekhorst, Marjolein B.M.
 
Subject diabetes, Human Immunodeficiency Virus, leprosy, schizophrenia, stigma Indonesia
 
Description Health-related stigma causes a negative impact on the lives of affected people and undermines the effectiveness of public health programs. This study aimedto explore experiences and consequences of stigma among people affected by four health conditions relevant in Indonesia– HIV (Human ImmunodeficiencyVirus), leprosy, schizophrenia and diabetes. In this qualitative study 40 people affected by the four health conditions in Jakarta and West Java, Indonesia–,were interviewed between March and June 2018. Data were analyzed thematically by following an integrative inductive-deductive approach. The experiencesand consequences of people with stigma were similar, but such experience were more severe among people affected by HIV, leprosy, and schizophrenia.Those with diabetes either experienced no or less severe stigma. The participants revealed that they experienced enacted stigma in healthcare, employment,and social interactions in the structural and interpersonal levels. They also experience the stigma in the form of internalized and anticipated stigma at an individual level. Incidences of human rights violations were evident. Social, behavioral, psychological, and medical consequences were also reported.
 
Publisher Faculty of Public Health Universitas Indonesia
 
Contributor This work was supported by funding from the Erasmus Mundus Joint Doctorate (EMJD) Fellowship-Trans Global Health Consortium [2013-0039] received by the first author (SSR), and from Leprosy Research Initiative (LRI) project number 706.18.20.LRI received by
 
Date 2020-02-01
 
Type info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Peer-reviewed Article
 
Format application/pdf
 
Identifier http://journal.fkm.ui.ac.id/kesmas/article/view/3306
10.21109/kesmas.v15i1.3306
 
Source Kesmas: National Public Health Journal; Vol 15, No 1 (2020): Volume 15, Issue 1, February 2020; 7-16
Jurnal Kesehatan Masyarakat Nasional; Vol 15, No 1 (2020): Volume 15, Issue 1, February 2020; 7-16
2460-0601
1907-7505
10.21109/kesmas.v15i1
 
Language eng
 
Relation http://journal.fkm.ui.ac.id/kesmas/article/view/3306/948
http://journal.fkm.ui.ac.id/kesmas/article/downloadSuppFile/3306/1719
http://journal.fkm.ui.ac.id/kesmas/article/downloadSuppFile/3306/1750
 
Rights Copyright (c) 2020 Kesmas: National Public Health Journal
http://creativecommons.org/licenses/by-sa/4.0
 

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